Monday, 22 June 2015

There's more?

Please read the first post in this blog for context
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Due to being cross-eyed my eyes were pointing at slightly different angles. This meant that the section of my retina capable of the highest level of detail would focus on different things. 

In people without strabismus both eyes point at the same thing which means the brain can combine the two images and can interpret depth through triangulation. This gives a perception of space which enables the person to do things like move through the world without bumping into doorways and catch things. 

The teaching at the time was that if strabismus wasn't corrected surgically by around five years of age the brain would permanently adapt by only using the input from one eye, ignoring the second.

Due to the treatment I'd received I had good vision in both eyes but not use them together. My brain would use one eye for primary vision and the second as peripheral. Switching between them was either voluntary or involuntary. Involuntary switching would be due to the object I wanted to see being obscured by something (most likely my nose) or the sun in my eye. Voluntary switching was like the "Camera 1, Camera 2" scene in Wayne's World but without having to wink.

Due to the lack of depth perception the world to me is flat. Like layers of paper moving over the top of each other. I find it difficult to catch things. Putting a glass down on a bench has to be a careful exercise. I'd love to fly quadcopters but I have no idea where they are in the air. If I can't see where something is touching the ground then I really have a hard time working out where it is in space.

I have a vivid memory of lifting a large glass jar full of sugar out of a drawer and going to put it onto a bench. I didn't have the jar high enough to clear the edge and sheared the bottom off on the bench-top.

About two years ago I read an article that gave me a glimmer of hope that the way my brain was set up to deal with visual information may not be permanent. The thinking was that games specifically designed to make the eyes work together, using the relatively new Oculus Rift, could reverse the changes made to compensate in the past.

The term amblyopia was mentioned which describes the decreased vision in one otherwise normal eye due either to structural issues or due to the brain ignoring the input from one eye to prevent double vision.

Discussion in the comments pointed me to a book called Fixing My Gaze by Suzanne Barry, a personal account with a very similar beginning to mine. The book contained a great description of amblyopia and what causes it. What really sucked me in was Dr Barry's description of her journey through vision therapy which was ultimately the process of physically training her eyes to point at the same objective and teaching her brain to use both eyes again.

Dr Barry was in her forties when she was able to gain the ability to use her eyes together and view space for the first time.

About the same time a show called Redesign My Brain was screening on the ABC. Presented by Todd Sampson (small man-crush there) it presented practical application of neuroplasticity or intentionally teaching our brains to rewire themselves to increase its abilities.

While the application in Redesign My Brain were towards skills like memory, attention, creativity and managing fear it got me thinking that it would really be possible for my brain to learn how to use both eyes again.

On the back of the hope that "Fixing My Gaze" and "Redesign My Brain" I did some research to find out what kind of treatment was available and if it was offered locally in Brisbane. The treatment is called vision therapy which employs various techniques to improve visual ability.

The journey had to be put on hold due to other priorities (my youngest is now 6 months old and going strong) but I've now got the opportunity to pursue therapy and see if I can redesign my brain.

My first appointment is tomorrow night and I know this will be hard. There are going to be challenges and set-back and loads of exercises. I'm anticipating head-aches and eye-strain but I believe that the treatment will make a difference but only time will tell. 

Wednesday, 17 June 2015

Happy Birthday and the Back Story

I need glasses.

I need new glasses really.

I was going to get a new pair a few weeks ago and mentioned it to my wife which was greeted with a very vague "Why don't you wait until your birthday".

"Sorry, what's my birthday got to do with glasses?" I found myself thinking and then promptly forgot all about glasses in the busyness of the day.

About a week later I brought it up again and announced I was going to the optometrists. The response this time was a pained look on Wifey's face when she said "You've forced me to do this"

"I've booked you in for vision therapy. I wanted to surprise you on your birthday but I had to tell you so you wouldn't get new glasses to only have them thrown out for something else.  Happy Birthday!"

Talk about a blessing and probably the most meaningful present she could give me.

So now the back story.

I was born with strabismus. Also known as a squint but most commonly known as being cross-eyed. Both eyes were turned quite severely in towards my nose. I have forgotten exactly when I was given the initial diagnosis but it was in the very early months of my life.

I was referred to a specialist in Brisbane by the name of Dr Paul Spiro who was the expert in the field at the time. The GP I was seeing at the time said that there wasn't anyone on the Sunshine Coast that he would trust me with so it was off to Brisbane for treatment.

In retrospect strabismus was something that really shaped my childhood. Photo albums are full of faces with eye patches and turned eyes. I have memories of eye drops and surgery, trips to Brisbane, jelly beans, hash browns, liver spots, the car park with the spiral staircase on Wickham Terrace.

There were the not so nice side effects of being teased at school too but fortunately I really don't remember that at all.

After three rounds of surgery, countless eye patches and drops, so many trips to Brisbane, hours in Dr Spiro's office (Thanks Mum!), and oh so much prayer my eyes were straight, well straight enough. I also had normal vision in both eyes, no glasses needed.

That is a miracle. The report from Dr Spiro was that he had seen children with eyes turned less than mine with worse results.

There were problems that no amount of surgery, drops or patches couldn't fix. My brain had been wired up to compensate for the strabismus and I was told this was permanent.

How glad I was to find out that this was wrong.

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More next week. It wasn't until I started writing that I realised just how much back story there was.